Over a year ago I switched from a personal, to a business Instagram; The Northern Italian. I wanted to showcase my photography, my style, my pup, and share my struggles with my health. I never wanted to be a ‘style influencer’ because 1. I am way too lazy for all of that business and 2. I don’t like the way some influencers are all about LOOK AT ALL THIS EXPENSIVE SHIT I HAVE. It can really make you feel like a piece of shit yourself. PSSSSST….it’s mostly all fake, you guys….
I want my Instagram to stand out to those who struggle everyday; to not only get out of bed every morning, but who are single, who suffer from some type of ailment, but WHO STILL WANT TO LOOK LIKE A FUCKIN BOSS. I like to buy skin care and make-up, I like to shop til I drop, but I also need to take 10 medications per day, sometimes I don’t work out, sometimes I don’t want to see any people, because I don’t like people, and people just suck everything out of me. I also smoke a lot of weed….it’s medical, okay.
So, I want my Instagram to be real, none of this fake smile and here is all my shit, and you should buy all this shit, because all this shit will make you feel better. NO! I mean, I do shop to feel better, but it really doesn’t; it’s a coping mechanism, and DUH! Of course it’s going to make you feel better until you get home and your bank account is like YO, BITCH..WHAT THE FUCK. Then you’re all depressy and watch 10 hours of Friends.
Developing a brand is difficult and I am struggling. What should I post? How often should I post? Do I want to let strangers in to parts of my life that I don’t really want to let them into, but I should because maybe others are suffering and need to see that someone else is suffering, too.
My Instagram needs work and I am still deciding what I want to do and what my brand should be. I want my posts to be very methodical and done in way that people feel driven to visit my page, or even my blog!
Social media can be a tool to help others or it can be a tool to cause damage to your own life. Use it wisely.
I was diagnosed with Hydrocephalus in 2016, I was 32; I am coming up on my three year anniversary of my first brain surgery.
I wont go into detail on my medications, because I don’t think that’s helpful; but I will tell you that I do have daily chronic headaches. Yes, I have a headache everyday.
The headaches are usually worse when I wake up because I have positional headaches, I do have an adjustable bed, so the head of the bed is raised, but I just can’t find the sweet spot. The headaches tend to get better during the day after I have been up for a few hours, because I have been upright.
My shunt has been adjusted numerous times, (I do have an adjustable shunt, so it’s adjusted with a magnet) but I don’t know if travelling or if other magnets nearby make my shunt get out of whack or what….but it’s literally the worst, because after I think I have it at the perfect setting, after about a month or so, something happens and I am right back to have headaches everyday.
If you don’t already know this, there is no cure for hydrocephalus, and the only treatment is brain surgery, or someone messing around with your head in someway.
2. Let’s Talk POT
I take medical marijuana and I love it; to be honest it’s the only thing that helps my pain. Nothing takes away the pain of a hydro headache, because nothing CAN help but the drainage of the CSF fluid, but I am not having another brain surgery unless it’s ABSOLUTELY necessary.
CBD – is the type of cannabis that will NOT get you high and it has ALL the benefits of healing your body. CBD is now legal and you can take CBD in numerous forms; such as topically (lotion), Orally (tincture), edibles (gummies), or you can vape.
THC – is the type of cannabis that will get you high and in some states you do need a medical marijuana card. Just like CBD, THC offers the same way to ingest the product, and you can also buy flower (bud) and you can do other fun stuff like dab with your bong. *I personally don’t have a bong…but if I did…I would be dabbing ALL DAY.
There are plenty of websites that offer CBD products; just remember that you may not feel the effects of CBD right away. It does take around 30 days for CBD to build in your system.
I take both CBD and THC and I do have my medical marijuana card. I would recommend talking to your medical provider about the benefits of medical marijuana.
3. How Do I Manage My Condition?
I mentioned that I was diagnosed with hydrocephalus three years ago, right?
Before I was diagnosed, I did yoga about five or six days a week, I had a pretty active social life, I liked to do stuff (whatever stuff was).
Now, I am tired ALL the time; I can’t do yoga anymore, people from that time aren’t in my life anymore because they don’t understand what this condition is and what it means.
My life is different now. Yesterday I had a headache so bad I couldn’t get out of bed until almost 1pm. I know I need to get out of bed because I will feel better once I am upright, but everything hurt, my head was just pounding, pain just radiated throughout my entire body.
Usually my headache pain is okay to manage. I can just get up and go on with my day, but yesterday…it was almost “do I go to the hospital or not?” These are the questions I have to ask myself now. This is my life and it’s lonely as fuck.
Botox has helped – I get this done at my neurologist office
Diet change has helped – Paleo (Dairy and Wheat and HUGE factors in headache triggers)
Light Exercise has helped – Walking, light weight training
Stress and Anxiety are also factors in headaches; (like most in their 20’s and 30’s.) trying to find ways to manage stress is also something I am trying to figure out.
4. Get Yourself a Good Neuro Team
If you have a hydro or if you’re like what does she do for treatment?
I see a few people and I really like all of them; they are always there when I need them.
My Primary Care Physician – I see him every three months
My Neurosurgeon – I see him every 11 weeks for botox
My Neurologist – I see him every six months or if I have issues
5. What could I be doing better?
Exercise and a better diet
Consistency is key. The Paleo Diet is designed to heal through food and I really think it could be beneficial for someone like me who not only has hydro, but also has some other ailments, to really consider what I am putting into my body.
Exercise it always important. It’s important to move your body. I have to do a better job at taking care of my body. Even though I might be tired, I need to push through and teach my body to work through the pain.
For all those suffering from pain, you’re not alone. There are so many of us out here.